Céline Dion opens up about her condition in upcoming Amazon Prime documentary: 'It's been a struggle'

Published on May 29, 2024 at 9:30 AM by Sharleen McAleavy

Céline Dion has been suffering from a very rare condition for the last two years. She has recently opened up to her fans about her everyday life.

Céline Dion break down tears crying talk condition syndrome health update documentary

Céline Dion is back in the news. No, she won't be performing live again straight away, but she has been doing a lot of interviews recently to promote her documentary I Am: Céline Dion, which will be released on Amazon Prime on 25 June 2024.

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The legendary singer of My Heart Will Go On has chosen to speak openly about her battle against the disease that is making her life impossible: Stiff Person Syndrome. Since her diagnosis two years ago, Céline Dion has spoken out more or less frequently to reassure her fans and announce new projects.

Céline Dion unveils her documentary trailer

Céline Dion recently delighted her fans by announcing the forthcoming release of her documentaryentitled I am: Céline Dion. On Thursday 23 May 2024, millions of fans gathered to watch the trailer for the film, which will be available on Amazon Prime on 25 June. From the very first words, the singer's deep emotion was evident as she explained:

It's not difficult to do a show. It's more difficult to cancel a concert.

We then see her taking some medication, and explaining, with tears in her eyes, the difficulty of her daily life with the disease:

I work hard every day. But I have to admit, it's a real struggle. I miss it so much. I miss the public. When I can't run, I walk. And when I can't walk, I crawl.

Céline Dion's battle with Stiff Person Syndrome

In an interview with Vogue France on Thursday 23 May 2024, Céline Dion revealed that she has been suffering from her syndrome since 2008, without ever having been diagnosed. It was during the Covid-19 pandemic that the singer decided to take a more serious look at her health problems. It took her 14 years before doctors finally put a word to her pain. She says:

It may sound strange to say this, but I was happy when I was told. I was finally going to be able to live with this disease and no longer suffer from it.

But that's not all. On 11 June 2024, an interview with the mother-of-three will be broadcast by the American channel NBC. Host Hoda Kotb has promoted the interview in a short video in which she echoes the words of her guest. And the words used are strong.

Céline Dion at some point — she is now much better — but at some point she almost died. She wondered if she was going to make it, if she was going to survive. It was a frightening time for her.

And there's more good news: in this interview, Céline Dion will... sing a song!